Monday, 2 December 2019
Hospitals Suck
I guess if you're in the pediatric wing it's not so bad....you get new life. Little babies....fresh, healthy, happy, and really scared parents! But the rest of the hospital sucks....people don't really smile. Nurses, doctors, patients, visitors.....everyone is pensive...heavy like they are walking around with a weight on their shoulders. That's how I feel every-single-time I walk down the hall. Hospitals are a soul sucking place despite all of the excellent care that is being given.
I knew this before when Dad was in the hospital but it takes a really special person to be a nurse because everything is always a problem. Bed 3 needs their lunch, Bed 2 needs to poop, Bed 1 needs their blood checked and then their insulin. Bed 3 needs to be put back into be before they eat lunch. Bed 1 needs lunch. Bed 2 needs bedpan taken away, new person being brought in for Bed 4 and everyone needs vitals and meds.....and on and on and on and on....holy shit-balls! The nurse takes care of 4 patients during the day, 6 at night....rounds take an hour and half and you need to read each chart first....and things get missed. There's not one shred of consistency. So we say the same things over and over and over again to each nurse that comes on staff and we breathe a sigh of relief when a nurse comes on that we have seen before!!
And things get missed....my sister and I are constantly reminding the nurses that mom is a brittle diabetic, her insulin levels are very sensitive and if they start to drop, they could potentially plummet very quickly. She has a broken arm!! How do nurses NOT know this?? Now especially that she isn't wearing her sling. And where's the god damn air mattress?? Every time we want one it takes a week to order. That's frustrating.
Nurses put up with a lot of shit....verbally abusive patients that are coming out of anesthetic, physically abusive patients that are coming out of anesthetic, patients that are trying to escape, patients that won't eat,patients that weigh lots, patients that scoot to the end of the bed, rip out nose tubes, IV's and catheters......for 12 hours a day. What an exhausting job.
I don't smile when I'm here. I try to stay positive for my mom's sake but I don't smile....my face feels drained and when I go home at night I feel like I have left a little piece of my soul on that hospital floor. I help others that are here because the nurses are so damn busy. So I help my mom's room mates get water with ice chips. I console others who are scared and confused. I help move tables, arrange phones, get bags because there is nothing like the feeling of helplessness and nobody should feel that way, ever.
So, I continue to sit vigil with mom in her now private room. I advocate, I talk when she can't, I am just a body so my mom doesn't feel helpless....or alone.....and I leave a little bit of my soul every day.
Because hospitals suck.
Monday, 3 December 2018
Fortune and Frustrations
Sunday, 28 January 2018
Time Passes
It's been a year since I started my leave to be with my dad in his final days. I now find myself on leave again, but this time to deal with my own health issue...my bum knee. This is not what I bargained for at this age...but here we are and I have a knee that has decided to go tits up, beyond certain repair. But I've had surgery in the hopes that I will be able to create a little bit of tissue to coat the surface of my bone and add a bit of cushion so the knee will last at least another 7-8 years before I need a partial replacement.
This is all terrible news to me. I'm quite devastated. It seems like I went from being very able bodied to very broken in the span of a week. And by very broken, I mean VERY! I can't do ANYTHING I used to. No kneeling, croutching, bending, no sports at all, no standing for long periods, and basically no walking properly which is wreaking havoc with the rest of my body and making me an entirely undesirable person to be around.
Yup, I'm a straight up bitch. Grumpy and tired all the time! But that's what chronic pain does to humans... It wears us down, makes us irritable and unhappy. This is what dad felt for the last 10 years and it scares me!! I am finding that I'm thinking about him a great deal while I'm off recovering from surgery. I grunt and groan as he did getting off the couch and he was 35 years older than me! WTF. I rub my knee a lot and I'm sitting around in comfortable loose pants.... Just like him. So I am then forced to ask myself, how will my healing and dealing be different than dad's. I'm still working on that one.
I read a funny post from a friend today.... The human body can create a fully functioning little human complete with a respiratory system, circulatory system, and nervous system and all of that but it takes us 7 years to heal from a sprained ankle and it will never be the same again!! Like seriously? I created 2 tiny little humans but my body can't heal a tiny spot on my knee. Doesn't seem right.
And just to add insult to injury, I've been forced to start taking blood thinners because of a post surgery clot in my leg. The prescribing nurse at the hospital warned me not to hit my head..... ☑, not to fall or bang into anything.... ☑, not to cut myself (shaving is now a high risk sport).... ☑ BUT the kind woman neglected to fill me in as to how blood thinners would negatively impact my body WHEN I HAVE MY PERIOD! Holy hell is all I have to say!! I hope it stops soon before I become anemic!
So, time certainly passes, at a very quick pace. But a day doesn't go by that I don't think about my dad. Most of the time it makes me sad, but more frequently, I laugh about what dad would have said or done in certain situations. I loved his Gino-isms. Just last night I was frustrated about something and it had me quite upset, so I had to hobble around the island in the kitchen a few times on my crutches. Dad would have asked why I was 'pasteing', of course he would have meant to say pacing but it never came out that way. I laughed very hard.
I am hoping that the lead up to Christmas this year will be less painful than it was last year... It was almost unbearable at times. Overwhelming sadness that I didn't know how to compartmentalize.... And then just like that after Christmas, it was gone. I miss him terribly... It'll be a tough few weeks ahead I'm sure.
But I'll reflect....and given time, this wound too will heal and be replaced with a thousand new memories...good or bad...it's how we humans role. Now if only we could figure out how to grow a new knee....
Friday, 14 April 2017
Healing
I physically hurt. My chest constricts, breathing seems difficult. This happens many times during the day. And I always feel like I'm on the verge of tears. It sucks....it fucking sucks. Losing a grandparent is one thing....but losing a parent. Nothing compares. Nothing comforts. Nothing can prepare a person for the hurt, the loss, the sense of emptiness, a feeling of being incomplete and the CONSTANT wish for more time, the CONSTANT looking back and wishing you could have said more, done more.
I hate it.....this whole process fucking stinks. And what I can't get out of my head is the image of my father's soulless body laying in the hospital bed. Proof that he won't be coming back. And I'm waiting for my head to heal, for my memory to replace that image with Dad playing with the boys, painting, having coffee on the deck, enjoying the sun on the porch swing. And yet, those images hurt too, knowing I won't see them any more. The most devastating image is Zac looking for his Opa on the couch...
I cry daily...I'm severely dehydrated. I should drink more water.
And yet, I am healing. I ask myself all the time, what would Dad do. And I am trying to find humour...and I'm trying to laugh. There have been funny things. Like the call Mom got on the morning of Dad's gathering from the heart monitor people in Peterborough saying that they haven't been able to get a reading for the past week.....well duh! Followed by the Purolator person delivering a package and requiring a signature from Dad....funny.
I try to let myself relax and enjoy conversations. I'm so very appreciative of my friends and the staff at school. They have all been wonderful. I have a better understanding of what others have gone through before me, younger staff members losing younger fathers/mothers. I am so grateful for their support and understanding. I'm lucky to have this extended 'family'. The best indicator that healing is happening is laughing so hard it hurts. I have my friend Sara to thank for that one. Her regaling a story from the weekend about a body scrub, a plastic sheet and only 2 face cloths....that was some funny stuff! She too lost her Dad a few years ago...I guess we all just need time.
But it all still fucking sucks. Still so many thoughts that I will struggle with and that I will struggle with alone.
I miss my tangible Dad. Someone I could hug....someone I could hear, the small nuances of his language, his hands the way he would hold a paintbrush or squeeze my shoulder. The smell of Old Spice. I miss him.....
Thursday, 23 March 2017
Finality
Dad was quite liked by the staff at the Haliburton Hospital. The nurses could generally get a smile out of dad each day and visa versa. Dad was larger than life, even at his sickest. When the funeral home finally picked Dad up from the hospital, Carol was right on the ball and captured the fact that Dad had a big personality by saying, "GINO HAS LEFT THE BUILDING'! It was very fitting.
Sunday, 19 March 2017
Intoxicating Sunshine
I sit now again at my father's bedside, being a presence, talking to his far away conscience while his room is flooded with glorious sunshine. You know, one of those days that Dad and I would have gone outside to enjoy. One of those days I would have had to try not to get him sunburned.
The crystal that Mom has hung in Dad's window is showering his bed in a sea of colours. Spots of rainbows all over. It feels primitive, the sun. Energy, the basic unit of life. The sun shines on the beautiful rose that mom brought. The rose with it's deep deep velvety red colour, that sits watch over Dad, undaunted in it's task.
We naturally crave sunlight. Those of us that live in Canada travel to warmer climes so that we can fill our souls and rejuvenate all of the sunshine that we have been deprived over our long winter. I sit in the sun....it makes me sleepy....it is truly intoxicating. I get tanned so I feel better, radiant.
Sunlight....it opposes darkness.
My Mom was very lucky this morning. The sun was bright and warm, and after another sleepless night at Dad's bedside, as mom was driving home from the hospital, the intoxicating sunshine lulled her into a sleepy state and she decided that the road was no longer a suitable surface to drive on....so she went for the snowbank. I am glad that there still WAS a snowbank. The car came to rest very precariously on the side of the hill of snow. All is well, Mom was not hurt, only shaken up, a lot. She's pissed about the damage to the car, but we are all very happy that she was not injured. I'm not sure that this family could take much more in the way of tragedy....
Intoxicating....
I feel intoxicated...and no, it's not from all of the drinking with friends this past week. Intoxicated from this process of dying. Not understanding it, being overwhelmed by it, never knowing what to think about it.
As I stand in the late afternoon sun shining into Dad's room, I have a thought. Death seems to be a force...with energy....I just can't explain it.
I am happy to have had my sunshine intoxication this past week....I am glad the sun shines today.
Sunday, 12 March 2017
Death, morphine, sunshine and laughter
Tuesday, 7 March 2017
Lots more living to do before thinking about dying...
Everyone here has a story...where have they been, what kind of mischief has each one gotten into in their lives. So many stories....and I bet if they are like my dad, each one has some very interesting stories indeed! Who documents these stories? I bet nurses meet some fascinating individuals...
Anyone who knows me, knows I've asked this question...how am I going to continue to live the best life I can live. How can I be the best human that I can be? Alternatively, I need to ask myself more often...what kind of mischief can I get myself into? I've already discussed earlier trying to find the wonder in each day...how will I find the laughter? We need to laugh more....as humans. Not be so damn serious all the time. My students think their world is falling apart for the smallest of things....
On another note...as I sit here keeping Dad company, I am joyfully watching George eat EVERYTHING that he is served for dinner. Good God the man must be hungry! He has meticulously opened the sugar packet and emptied that into his mouth. He looked quite pleased and a little surprized that it was sweet. The salt was next! Not such a pleasing face, and....last but not least, the pepper was greeted with a bit of a coughing fit an almost sneeze and a runny nose...but he got it all packed away! Damn! THAT, was my chuckle for the day. Gotta love me some George.
Here's to LIVING each day....
Monday, 6 March 2017
Sounds and smells
I am sitting beside Dad's bed, he sits in his chair leaving the bed empty. It's a special mattress that is constantly inflated with air to prevent Dad from getting (more) bedsores. He's so skinny that the extra padding is a wonderful relief to his aching bones. So I am sitting beside the hum of the pump....it's lulling me into a sleepy mode. Good white noise. It's good that George is deaf so he can't hear the hum. The hum is decidedly better than the constant noise of the construction going on all around us. Floors, drywall, painting, trucks outside it goes on and on.
I listen to Dad snore, George whistles as he schleps down the hall, Joe moans and groans to try and communicate, and still there is the hum of the mattress pump.
Which brings us to smells.....holy Jesus! Walking into a hospital is an olfactory onslaught very much like stepping foot into an elementary school after a wet, warm spring day. *Barf* Last week I had the pleasure of doing both all week. Please realized that I am a hypersensitive person (I keep saying to my friends that I'm sensitive and they laugh - I'm not sure why...) so I can smell things. My sister has the same keen sense of smell....like a tracking dog, she can smell a french fry stand from a mile away! Haha! She'll kill me for that one.
So walking into this hospital daily brings about a nasal battering...antiseptic, urine, poop, other bodily fluids, and some indistinguishable combination of floor cleaner and flowers...I think. Each day I visit Dad I bring coffee, mostly for us both to enjoy but it's also a wonderful way of blocking the smells. I got into habit last week of stopping at the convenience store in Carnarvon. I would go in and buy a small bag of Miss Vickies sea salt and malt vinegar chips and a can of diet Coke. At first I thought it was to keep me awake....but then I realized it was to disinfect my nasal passages from the hospital smell and to prepare myself for the wet, soaking, sweaty boot, sock stank of the elementary school where I picked up Zac. Oh god those chips were cathartic! By the end of the week I said fuck it and bought a big bag!
The onslaught to my nose didn't stop with hospital and Zac's school. I was able to take Andrew to a badminton tournament this weekend. Have you ever smelled wet, sweaty, gym shoes that don't have a chance to dry and the stinky feet that come out of them? Do all teenage boys have sweaty, clammy, gross smelling feet? DAMN!
It's time for a walk....I'll see what other sounds and smells I will come across today.
Wednesday, 1 March 2017
Routine and the joy of coffee!
I don't look at the scenery today. I don't find myself scanning the roadside vistas for anything interesting as the light is flat and dull. The one amazing piece I see is when I pass Boshkung Lake...the fog has enveloped the distant shores and just left white sky with white snow and some black trees in the foreground. It's quite stunning.
Dad and I are developing quite a routine. He is awake today when I get to his room and he smiles and his face lights up when he notices that I have brought hot coffee. He asks if there is something to nibble on....I brighten his day once more when I tell him I have also brought a croissant with me that he can dip into his coffee. Often, Dad can't wait to have the coffee but it is always too hot! I have to distract him so it can cool off. Eventually we get to dipping and sipping without spilling or burning.
Yesterday Dad was moved back into the room with the view of the bright blue tarp that covers the fence outside of his window. It's not a bad room, kind of away from the general noise of the nurses station. Not that noise matters anyways. Dad shares his room with very old George. He's a quirky kinda guy. Not unpleasant, but not too social either. Dad was with George before and when Dad would be out of the room George would take to making sure Dad's bed was neatly made. I'm not quite sure if George missed Dad when he was taken to a different room for 5 days.
We move all of Dad's things into his space by the blue tarped window and I notice that George has Dad's TV on and has absconded with both TV remotes. Ha! Apparently George shops around on his wanderings around the hospital. A week or so ago, Dad's magazines went missing. George had stashed them in his side table! I try not to be too obtrusive to George when I visit Dad because this is his 'home' too.
I reflect on this yesterday....hospital for health or death...tough call. Tough place to work. Can't imagine. It's time again to take Dad for a tour...perhaps a run through the drizzle. Heat up his cold coffee and give him the last of his croissant to enjoy before I have to go and pick up the kids.
It's been a good day...again.
Tuesday, 28 February 2017
Colour and Sunshine
Another sunny day!! I was able to take Dad outside again....yes I put sunscreen on him! It was a bit of a chilly wind but we found the sun beautifully warming and very bright.
Today is my sister's birthday. I ask Dad if he knows that...he said yes but I'm never sure if he's covering up the fact that he might not remember clearly. I'm never sure if I should ask him if he remembers something...I don't want him to feel bad if he has actually forgotten. Dad reminisces again of walking the shores of the Zürich-see....at least I think that's what it is. I have a deep regret in me that I never toured Zurich or Switzerland with Dad so he could explain all of his hang outs and favourite spots. I know that at some point Andrew will take a trip there and want to go skiing on Zermatt....again...I think. Dad has instilled this desire in my son and if I don't get a chance to take Andrew myself, I hope that he will have the travel bug and some great friends and go and explore Switzerland and Europe on his own.
When we came inside to warm up in the little glassed in seating area, I hear these two young people (I say young because they are younger than I am.....likely in their 20's) and they are talking with the young man's grandfather. I chuckle at the conversation that goes something like this...
"Are there still loons on the lake Gramps?" (I wonder if he means in general or like RIGHT NOW, which would then make it a pretty stupid question. Of course there are no loons...they migrate dummy)
"Ya" the grandfather answers. There's a substantial pause...
"What's a loon" the girlfriend asks. Seriously???? It's on our fucking dollar coin! Are you Canadian? I hear she lives in BC and apparently they don't have loons out in BC....but...IT'S ON OUR DAMN "LOONEY". (Sorry about the potty mouth, it slips out every now and then)
"It's like a duck" the boyfriend says. WHAT??? Now I'm just trying to hide my face and the incredulous look that I most likely have smeared all over it!
I won't go into the rest of the conversation, it was just weird.....and sad. I find myself being a little too judgy. That's my new word - judgy. I hate judgmental people so I am very critical of myself when I find I am being THAT person. It's hard sometimes to hold back the judginess....so I admonish myself and try to find excuses as to why these humans that I am judging are behaving the way that they do. I am not sure if I fear being judged by others. I believe that if your actions are with good intent, than ye shall not fear judgment! Whoa...that sounded a little too religious for me. Where does judgement come from? A lack of knowledge or education? A lack of experience? Worldliness? I don't know. I've stopped worrying about it for today.
I got Dad settled into his room again in a nice warm beam of sunshine (like a cat) so he could rest before Mom came over the dinner time. With the beautiful sunshine, it was a wonderful drive home, very rich in colour and picturesque scenery. I think about stopping the car a couple of times to take a photo but I always fear that the picture I take won't really do the scene justice. So I carry on, telling myself that there will be many opportunities to see such things again and that my memory is as good as any camera...we'll see. In my minds eye I snap photo after photo of scenes with long blue shadows cast on the very clean and unblemished surface of snow created by very stark, dead and grayed trees of pine or cedar. It's wonderful!
My day ends driving to and from Barrie to take Andrew to his volleyball practice. It's a good one and he is practiced well.
It was a good day.
Should I ever win the lottery
Of course, one would have to play the lottery in order to win the lottery. But if I did play, and if I did win big, what would I do with the winnings. What would you do?
If the jackpot was substantial enough, I'm at a point in my career that I would quit my job. There are enough young teachers out there that are eager and willing to fill my shoes. As I am often reminded, everyone is replaceable. I would pay off all of my debts. I would give a large portion to my other family members to do with as they wish. I would invest and I would travel. Winning the lottery would be an easy way to solve some financial issues.
Ultimately, if I had unlimited funds, I would grant my father a dying wish. There are 2 really, one he has voiced and the other he has spoken of at length as a wish he could have done at some point in his life.
Yesterday, Dad voiced his wish to get on a private charter plane and travel to Zurich, hire a driver and tour all of his hangout places, fly back to Canada and come right back here to his hospital bed.....not so difficult really? What kinds of funds would that require? I dream.....how hard would that be to pull off? Mom told him he would need to take 2 nurses with him....which he would be ok with. Dad also said that it would be very nice for mother to join him. So how, without having unlimited resources and being a multi-millionaire with connections, do people actually make a request like this happen....? Quite simply, you don't. So my only wish is that I can fill Dad's last precious moments with richness in other ways since I don't think I can make the Zurich visit happen.
Dad's second lifelong wish has always been to visit Russia. Moscow, St. Petersburg, the Hermitage Museum. I've heard about these places for as long as I can remember. I fear that if I was to ever visit any of these places, that they wouldn't live up to the images Dad had painted for me in my mind (kind of like trying marroni - a chestnut paste which Dad always thought was quite devine) Perhaps these places hold a special mystique for Dad of places far far away. Places he thought were difficult to visit.
Well, I didn't play the lottery, I'm not a millionaire so I guess I too will dream.....
Friday, 24 February 2017
Everyday is not just another day
I decided to take a day at home today and not visit my Dad. I had many things to do that needed to be done on a weekday and had to be done soon. Part of my responsibility was coming home and taking care of my kids during my week 'on'. Time to shower them with unconditional love, advice and food! (I've been told it's important to feed my kids). And for a day off, it was quite the whirlwind!
In general, my day went like this: get up because dog has to pee....take dog out, bring dog in, feed dog so she doesn't make those droopy puppy dog eyes at me, make lunches, wake younger kid (who is 11 and special needs - I'll likely chat about him a lot), wake older kid (I'll likely talk about him a lot too), go back and make breakfast, get younger kid dressed and moved to kitchen so he can have his liquid breakfast, go back and wake older child, take both children to school (usually it's only the younger one as the older one can walk but it's raining today and I'm off so I can treat the older one to a ride), come home, do business on computer, go to town to do business there, go to another town to do more business there, come back to first town to do business at a couple of other places including shopping, go home do one last piece of business on the computer, go and pick up younger kid from after school program, go out to Forest home (my ex's house) to pick up the older kid (he had to go there to get his shoes for a dance tonight - it's a 20 min drive each way), come home again, cook dinner, feed kids, help older kid get ready for school dance, drive kid to dance, feed younger kid more food, put younger kid to bed, entertain older kids' friend that is staying over (older boys have volleyball tournament tomorrow), pick up older kid from school dance......and here we are.
If you ask any other parent with involved children, or multiple children, I'm sure they will all have a similar if not more involved day and yes, I have left out all of the things we all do daily like eat, let the dog out and catch up on news and social media. So why am I going on about all of these mundane things? Within all that is normal and routine, there are wonderful moments that I have to stop and absorb and it is these fleeting moments that make each day special....we as humans need to harness the 'special' that happens EVERY DAY in our lives.
My first special moment was hearing Zac (my youngest) laugh as he woke up this morning. I love when he laughs, it makes me laugh. I went to the library and got an audiobook (for all of the long drives I am taking - I need a break from radio play music). As I started to listen to it, it featured a cello solo....it was beautiful and rich. I get an update on Dad from Mom who says that it was an uneventful day. This is great news in the world of Dad!! It means nothing was wrong today. I watched Andrew (my oldest) get dressed in his suit for his semi-formal dance....hair, shirt, tie and he let me help him put his jacket on. He looked so handsome! And finally, before I went to bed, I checked on Zac sleeping...so relaxed, so content, feeling safe, feeling cozy under his big duvet. I love watching him sleep. I puff up when I see him all vulnerable like that, as a protective parent should, I guess. All of these happenings helped enrich my day, helped me appreciate all that I have.
Which brings me full circle to my Dad again. As I am shifting a sleeping Zac under his duvet, I can't help feel bad for Dad who has expressed deep sadness in the fact that he will miss out on so many things if he dies. It's a wisp of a thought, fleeting out of my head as quickly as it arrived. But it was still there. I suppose what I am experiencing is similar in nature to Oprah's practice of writing down each day what you are grateful for. No doubt there are some days when finding the 'special' seems impossible, but I think we need to try and find the special, if not in something that we did, than in something that happened to someone else for there is special everywhere. One day after a beautiful drive on my way to see Dad, I posted this, "The world is full of incredible simple beauty...if we just take the time to really look." I am really looking, not searching, but looking.....seeing....noticing....
Thursday, 23 February 2017
Day 2 of many....
Wednesday, 22 February 2017
It's a beginning...
Hospitals Suck
Don't get me wrong...I am SO damn grateful every day of our world class health care system; the doctors, the nurses....all fantastic. Bu...
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Oh what a strange 36 hours this has been. (Written Thursday March 9th) Mom and I received a very early phone call from the hospital th...
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So many things to write about...so many confusing thoughts. It's overwhelming on a daily basis. I don't see the simple beauty, I...
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Dad got his teeth back, I won a Tim Horton's coffee! Everything is good in the world!! However, I am finding out that Dad is full ...